Tymek’s Daily Fight: A Family’s Plea for Life and Support
It has been a long time since we last shared an update about our little Tymek. Our lives have been consumed by the daily reality of fighting for his health. Each day carries fear for his life, each night brings new worries, and every milestone is a battle. Our son faces challenges that no child should ever face, yet through it all, his courage inspires us.
Tymek suffers from a cruel and relentless disease—spinal muscular atrophy (SMA). This condition slowly weakens his muscles, making even the simplest movements a struggle. Over time, it has affected his diaphragm, the muscle that controls breathing. Unfortunately, his diaphragm can no longer function on its own, and now Tymek is completely dependent on a machine to breathe. The ventilator that once helped him now performs the work entirely for him. Every breath he takes is a reminder of the fragility of his life and how dependent he is on medical support.
Our daily routine revolves around care and constant vigilance. Because Tymek continues to grow, all his medical equipment must be regularly adjusted or replaced. His scoliosis, which is already severe, will soon require spinal surgery. The financial and emotional burden is enormous, and without your help, it would be impossible for us to provide him with the care he needs to survive. We are deeply grateful for all the support we have received so far, and we humbly ask you to continue standing by our side in this fight.
Tymek’s life is a struggle that most people cannot even imagine. SMA is an insidious disease that attacks quietly, even when we cannot see it. Weak muscles leave him vulnerable to frequent infections, particularly of the urinary tract. We constantly travel to larger cities to see specialists who can monitor his condition and adapt his care plan. Every appointment, every consultation, and every therapy session is a step in the long, exhausting journey of keeping him alive and improving his quality of life.
At the beginning of this year, we decided to increase the intensity of Tymek’s rehabilitation. The results have been encouraging. He is making noticeable progress, even in his speech. There was a time when we feared we would never hear his voice again. After his tracheotomy, he went for several months without making a single sound. It was heartbreaking, but through tireless work with his speech therapist, he is now beginning to speak single words. Every word he utters fills us with hope and joy—it is proof that despite everything, progress is possible.
We constantly witness the strength and resilience of our child. Even in moments when he is connected to machines, surrounded by medical equipment, and exhausted from therapy, Tymek manages to smile. These small victories give us the energy to keep fighting. Every day is a reminder of how precious life is and how every bit of support makes a difference in his journey.
The costs associated with his care are staggering. From specialized medical equipment and therapies to ongoing consultations with neurologists, pulmonologists, physiotherapists, and other specialists, the financial demands are overwhelming. Even with our best efforts, we cannot cover everything on our own. Every contribution, no matter how small, directly impacts Tymek’s ability to receive the care he needs.
Beyond the medical challenges, we also strive to give Tymek a childhood filled with love, happiness, and moments of joy. We want him to experience the world in the ways every child deserves. Despite his limitations, he brings light into our lives and those around him with his bright eyes and infectious courage. Supporting him is not just about survival—it is about ensuring he can have a life worth living.
This is why we reach out to you today. Your support allows us to provide Tymek with critical therapies, updated medical equipment, and the specialized care he requires. Every donation, every message of encouragement, and every act of kindness strengthens our family’s ability to fight for him. We know that we are not alone, and that the love and generosity of people like you can make an enormous difference in Tymek’s life.
Tymek’s journey is far from over. Ahead of us are more surgeries, more therapies, and countless challenges. Each day, we wake up with the determination to ensure he receives the best care possible. We are committed to helping him reach his potential, to hear him speak more words, to strengthen his body, and to give him the opportunities every child deserves.
As we continue this journey, we ask you to join us. Please help us give Tymek the life he deserves—a life filled with hope, progress, and the joy of being a child. Every act of generosity brings us closer to that goal, and every show of support reminds us that even in the darkest times, we are not alone.
Thank you from the bottom of our hearts for standing with us. Thank you for helping our little Tymek fight, grow, and live. We are forever grateful for your compassion and support.
With hope and gratitude,
Tymek’s Parents
